Datasets & cohort studies
The Telethon Institute has a range of long-term studies to
expand our knowledge on all aspects of child health, the largest of
which being The Western Australian Pregnancy
Cohort (Raine) Study.
The Raine Study is a cohort of children born in Western Australia between 1989 and 1992 who have been followed closely over the last 23 years by a collaborative team of local, national and international researchers. The Raine Study is one of the largest successful prospective cohorts of pregnancy, childhood and adolescence to be carried out anywhere in the world. The Raine Study is based at the Telethon Institute and is an invaluable asset to Western Australian researchers.
The Raine Study is a unique resource for Western Australia. There are 24 research groups examining different aspects of the development of health and disease. They include:
- Asthma & Allergy
- Cardiovascular & Metabolic
- Cognitive Neuroscience
- Dental Health
- Developmental Origins of Health and Disease (DOHaD)
- Eating Disorders
- Gastrointestinal & Hepatology
- Genetic Epidemiology
- Growth & Nutrition
- Hypothalamic-Pituitary-Adrenal Axis
- Infectious Disease
- Language Development
- Mental Health
- Physical Activity
- Pregnancy & Birth
- Reproductive Health
- Risk Taking Behaviour
- Sleep Studies Groups
Researchers are based at the Telethon Institute as well as The University of Western Australia (Schools of Women's & Infants' Health and Medicine & Pharmacology), Curtin University and the University of Notre Dame. The Raine Study has national and international research collaboration.
The Population Health Research Network (PHRN) is a national collaboration of governments, universities and key medical research institutes (including the Telethon Institute) that have come together to build a nationwide data linkage infrastructure aimed at improving the way health and health related data is made available to approved researchers across Australia.
Involving every Australian state and territory, the PHRN infrastructure will ensure better sharing of health data and a better ability to research, analyse and monitor health trends and health needs on a national whole-of-population basis.
The Telethon Institute plays a key role in the PHRN, hosting its national program office located in Subiaco, Western Australia. For more details visit www.phrn.org.au
Raine Study Manager: Jenny Mountain